hae :-) Day

On 16 May every year is hae day which is aimed at raising awareness of HAE (hereditary angioedema) among the general public, healthcare professionals, healthcare decision-makers, and industry representatives.1 It’s an excellent opportunity to promote an environment for early and accurate diagnosis to improve care for people with HAE.2 

What is hereditary angioedema?
Hereditary angioedema is a rare but potentially life-threatening inherited condition.3 HAE affects approximately 1 in 50,000 of the population and affects all ethnic groups equally.4 HAE is characterised by swelling of the tissues (angioedema), lasting from 3 to 5 days. These swellings can occur on any part of the body, including hands and feet, arms and legs, trunk, intestines, genitals, face, tongue, neck, and airways. Patients may also have bouts of severe abdominal pain, nausea, and vomiting that are caused by swelling in the intestinal wall.3

HAE patients often spend a long time with different medical specialists before they are correctly diagnosed. To improve the time to diagnosis it’s important to raise awareness of HAE so that people can get appropriate treatment.3

The theme for hae day 2022 is ‘Stepping Up for the Global HAE Movement’. In 2021, we generated 168 million steps, enough to walk around Earth’s circumference just over 3 times! This hae day, step up to raise awareness worldwide, securing a better quality of life for everyone with HAE.2

To find out more about ‘hae day’ and how you can get involved, visit

https://haeday.org/events-2022/

References

1. Hae day 🙂 2022: https://haei.org/events/hae-day-2022/ (accessed May 2022).

2. About hae 🙂 day: https://haeday.org/about-hae-day/ (accessed May 2022).

3. HAE UK: https://www.haeuk.org/ (accessed May 2022).

4. Hereditary angioedema: https://www.immunology.org/public-information/bitesized-immunology/immune-dysfunction/hereditary-angioedema (accessed May 2022).